National Spina Bifida Conference

“Australian Masterclass”

Information Booklet



Friday 19th October, 2012

0800 Registration Open - Coffee and tea available
0830 Welcome - Dr Charles Scarf (Member of Conference Organising Committee)
0840 Opening address John Della Bosca - (Campaign Director for National Disability Insurance Scheme)
0850 Antenatal Consultation
  Dr Antoinette Botman - NSW
0910 Denying Disability: the increase in disability directed terminations, a parent's perspective
  Diane Belcher - NZ (text of presentation)
0930 The complexities of nursing an infant with a Lumbosacral Myelomeningocele
  Caroline Karskens - NSW
0950 Perinatal Management Ethics - Discussion panel
1010 Morning tea
1040 Key Note Address - Technology for Self- Management
  Dr Brad Dicianno - USA
1120 Understanding Non Verbal Learning Disorder
  Dr Carol Russell and Tally Russell - USA
1200 "To get things done - Challenges in everyday life"
  Marie Peny-Dahlstrand - Sweden
1220 Australian study into learning experiences of students with shunted hydrocephalus
  Dr Barbara Rissman - QLD
1300 Lunch
1400 Urology Update
  Dr Danielle Delaney - NSW
1430 Orthopaedic Update
  Dr Paulo Selber - VIC
1500 Spinawebs : Impact of a true multidisciplinary approach
  Kaleidoscope Paediatric Rehabilitation Service
1510 "What we do when there is no cyclones or floods"
  Bill Shead - QLD
1520 Afternoon tea
1550 Holistic assessment of pressure ulcers
  Dr Bonne Lee - NSW
1610 Plastic surgery and Spina Bifida
  Dr Sandrine Roman - NSW
1630 Pressure management model of care
  Louise Kelly - NSW
1645 Foot assessment for the patient with Spina Bifida
  Luke Taylor - NSW
1700 Meeting of State Spina Bifida Associations
1830 Pre Dinner Drinks
1900 Conference Dinner



Saturday 20th October, 2012

0800 Registration Open - coffee and tea available
0830 Key Note Address - Hospitalisations and Preventable Conditions in Adult Spina Bifida
  Dr Brad Dicianno
0910 Spina Bifida Adult Resource Team
  Jade Baynes and Lynne Brodie - NSW
0930 Unlocking potential, the goals approach
  Jodie Kennedy - QLD
0940 Fertility Issues in Adults Spina Bifida
  Dr Carolyn West - NSW
1000 Morning tea
1030 Can we improve physiotherapists knowledge about managing children with Spina Bifida through online learning?
  Nicole Thomas - QLD
1040 Neuropsychology in Spina Bifida
  Dr Ellen Northcott - NSW
1110 Shunt register update
  Dr Andrew Chow - NSW
1120 Neurosurgery panel discussion
  Dr Ray Chaseling, Dr Warwick Stening, Dr Andrew Chow - NSW
1200 Lunch
1300 Workshops and discussion groups:
  • Physiotherapy Workshop
  • Occupational Therapy (including wheelchair prescription for children with Spina Bifida - Claire McDonagh)
  • Continence Management (Bladder & Bowel)
  • Understanding Executive Functioning Issues in People living with Spina Bifida
(Each workshop will go for one hour and be repeated giving you the opportunity to attend two different sessions)
1500 Afternoon tea
1515 Monash Children's Spina Bifida Database Project
  Dr Sabine Hennel - VIC
1530 Key Note Address - Spina Bifida Model of care
  Dr Carolyn West - NSW
1600 Closing remarks and presentation of awards (best paper, best poster presentation) - Dr Charles Scarf